Hello
everyone and welcome to a wet and cool Saturday reading the comments
on my post about Parkinson's this morning over at my main blog made
me think about how I feel about things.
Well
I feel like I can take a few steps forward only to slide backwards,
for me Parkinson's is like trying to walk across a river by stepping
on slippery stones. You are not sure footed and feel like you are
going to end up on the ground at any moment.
I
have been travelling this route for what seems at times like ages, I
first noticed a tremor in one of my right hand fingers after dropping
Leo (Sam) off at school one morning, it was in fact the first day of
school in 2015 and a teacher had to pry him off me in order for me to
leave. I was walking back to the car and noticed my finger moving, I
remember thing what the hell is wrong with my finger, I then got in
the car and left and the movement stopped and I gave it no more
thought till it happened again a few days later.
Over
time I started to notice it when I did other things like using the
computer mouse but still didn't think much of it, over time though it
started happening more and more. I did manage to hide the tremor from
my family for 6 to 8 months different people noticed it at different
times.
After
my doctor noticed it I was referred to a neurologist at the hospital
who said it was a Functional Tremor and wouldn't get any worse. He
prescribed some Parkinson's medication which did very little but he
only had my try it for 4 weeks and only the one type before giving
that up.
He
was wrong things did get worse so I went back to see him and he
referred me to a movement disorder clinic which turned out to be just
another neurologist who agreed with the first guy.
When
things got really bad I decided to see another neurologist privately
the first one wasn't sure he thought it was kind of like a Functional
Tremor but not completely and then I was referred to the lady at
Westmead (Sydney) a 2hr drive from here and thing started to improve,
that was only a couple of years ago and it was only after she
arranged for me to be seen by a team of doctors that the term
Parkinson's was mentioned.
My
mum always said it was some kind of Parkinson's and my GP also said
he thought it was more like Parkinson's.
I
am thankfully that I have always been one who takes life one day at a
time, as now each day is different with it's own struggles.